I’m back!

Did ya miss me?!

Been in hospital for a little while. I even spent my birthday inpatient, which wasn’t fun, but it wasn’t too bad. I made some new friends, who I’m still in contact with, and a couple of the girls on the ward even bought me cards and prezzies! Good friends.

I’m still in a fair bit of pain, and they still don’t know what’s causing it, but that’s par for the cause. On the plus side, I’m finally on a decent insulin regime, so I should be seeing results from that soon, which is a relief.

It’s nice to be home.

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My eyes! They burn!

They really do! We just had our annual diabetic eye exam. They put these drops in your eyes, and they sting like fuck. Then you sit there for 20 mins while your pupils dilate so much you look like an anime character lol They take photos of the insides and back of your eyes with this seriously bright flash!

The big thing is that the stinging and burning takes 4 hours to wear off *yikes* And until it does, your vision is like blurr-o-vision, and light hurts. Like it feels like you’re being stabbed in the eyeballs. I’m typing half by guesswork and half by knowing where the letters are lol And now I have a headache from my eyes being messed up. Meh.

I need cuddles. Big soppy snuggly cuddles. Any volunteers? ๐Ÿ˜‰

Blaine

New Meds

We has some! We saw the DSN on Monday, and started Victoza. The injections are painless, which is nice. But the side-effects are making themselves known. We’ve had to change up to a stronger anti-nauseant, or we’d be puking our guts up. Still, gotta just push through it. This med’s too important to stop. We need our diabetes to get under control, and this is the med to do it.

The new anti-puke pill is an old-school anti-psychotic. In lower doses, it’s great for nausea and vomiting. Our doc gave us a higher dose than we were expecting though. It’s in the range for anxiety, which is a huge added bonus. Thing is, it’s knocking us out! Between the Stemetil and the Victoza, we’re a huge bundle of dopiness and fatigue. We just want to sleep all the time, and when we’re not sleeping, we’re doped to the gills!

It’s a good thing that we bought some pasta and pizza, because that’s about the limit of P’s cooking skills, and we’re not up to it at all! So at least he can feed the kids! P’s being wonderful though, as usual, and is doing all the things we usually do, so that we can sleep, and wait for the side-effects to wear off. We’d be fucked without him, he’s amazing *wubs*

So here we are, at 4am, while the rest of the house sleeps, watching Wimbledon from yesterday, and drinking fizzy grapefruit juice. With the air-con on coz it’s muggy and horrible. I’m sure I had more to say, but the brain’s shut down on me! I can feel my IQ dropping! I hate that.

Nick

DSN called!

Fucking yes! The DSN just called, finally. She’s wrangled us an appointment for 25th of this month, to start Victoza! Everyone’s boneless with relief, and there’s crying and laughing in the streets. Literally!

One of our biggest triggers is medical neglect. Fuck knows, we’ve been put through enough of it in the past ten years. Doctors who think they know it all have nearly killed us twice, no joke. We’ve had to fight every step of the way to get the meds cocktail we have that works, and to get the diagnoses of things we knew we had, but weren’t believed about. That just freaks us out, the not believing us thing. Ugh.

We have an excellent Medical Team, Inside. They’ve read up on everything possible to do with our conditions, to the point where we know as much as our GP. Hell, even our GP says so! He’s a good guy, our GP, but it’s taken us 10 years to find him *sigh*. Our Medical folk read the British medical journals, own the latest BNF (British National Formulary, the prescribing bible!) and ne’er a drug passes our lips (or anywhere else lol) without being fully researched. Can you tell we don’t trust doctors?

Anyways, time to go listen to early Adam Ant, and grin a lot!

Bethanie