Transitions

I have a son. He’s wonderful, he’s handsome, he’s caring, loving and he means the world to me. He’s 18. I love him with all my heart.

He came out to me and his Dad a couple of years ago. Neither of us batted an eyelash. As long as he’s safe and happy, that’s all that matters. I’ve supported him every step of the way. And I’ll never stop loving him.

 

He talks to me about most things in his life, knowing that I’ll never judge him, and I’ll be there for him. I give him advice, and he sometimes takes it, sometimes not. And that’s ok, because advice is always to be offered, not forced upon someone. We’re close, really close. And I love that! How could I not?

He dropped a bombshell on me yesterday. He’s been buying women’s clothes and cross-dressing in his room. Funnily enough, I’m good with that. I really am. Like I said, I want him to be happy. I even told him where to get decent clothes at reasonable prices! I’m being as supportive as I can. He’s my child, and I love him, no matter what.

 

Thing is, he’s been thinking about this for months, and he thinks he might want to try living as a woman. And he’s stumped me. I’ll support any choices he makes, it’s his life and his body, all I can do is be there for him and with him, and love him. I know what a hard decision he’s facing, and my heart breaks for him.

 

Thing is, what do I do? Who can I talk to about how I feel? His Dad isn’t really all that supportive, he thinks it’s just a phase, but what if it isn’t? I’m a horrible person in that I don’t want this to be real, I don’t want my son to be gone. Yes, I know I’ll gain a daughter, but that’s not the point, is it? I feel so selfish for even thinking this, but I can’t help it. I guess lots of parents in my position go through the same thing, conflicting feelings, but it doesn’t stop me from hating myself for it.Maybe I’ll adapt in time, but right now I’m not there yet.

Don’t get me wrong, I’m there for my child, no matter what. I love my child, no matter what. I support my child, no matter what. I’ll be his rock, his shoulder to lean on, his arms to cry in, and his Mum who loves him. Always.

So why am I crying?

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R.I.P. Ron

I know I’m late, but I just found out that one of my favourite bloggers has died. Ron hadn’t been at all well for a long time, and he was badly let down by those health professionals who were supposed to help him. Still, he blogged relentlessly, everything from disability rights and politics, to wonderful recipes, and so much more besides. He had a brilliant mind, and such a turn of phrase, that every post was a brilliant read.

Rest in peace Ron. May you finally be in a place of no pain, and of peace. You are missed.

https://ronsrants.wordpress.com/

Time machine please…

I think I did something stupid.

I shared my real name with someone.

No reciprocation, not even acknowledgement.

I feel unsafe now. I wish I didn’t. I do trust this person, it’s just… I don’t feel safe. It’s only the second time I’ve done this, and it meant a lot to me. I don’t know how to handle this. Do I ask the person why? Do I let it go? If I let it go, will the unsafe feelings stop in time? If I ask why it’s been ignored, will I create bad feelings with this person? I don’t know.

I wish I’d kept my mouth shut.

Remembering LeKZ

For those who haven’t read the backlog, our best friend LeKZ died a few weeks ago, after a long and distressing illness.

For all the antagonism between some of us and them, those of us who knew them and loved them find ourselves missing them more each day. Too many times does one of us think “must tell LeKZ about that”, and then get that sinking feeling when we realise we won’t be having that conversation, ever. It’s not getting easier, but harder. We’re finding ourselves having conversations with them in our head, and we knew them so well that we can easily respond as they would. It almost feels like they’re on the verge of being introjected, but we won’t let that happen. That would be too much, too painful, too wrong for us.

But it’s so hard to let go. Even harder when you know that we’re the executor of the will, and have a room full of their belongings in our house. Constant reminders. It’s heartbreaking to go through her things, stuff that meant something to her, and have to decide what to keep and what to give to charity. The sad remnants of someone’s life, sat in boxes and bags, all there is to show that they were here. Apart from memories, of course. Lots of memories.

The only person/s who knew them, as they were, all of them as individuals, was us. Their names, their personalities, their quirks, loves and hates, habits, voices, nobody knew except us. So it’s down to us to remember them all. We didn’t just lose a friend, we lost so many friends. It kind of feels like a natural disaster wiped out a couple of hundred, and we knew them all.

“There’s just some things that time cannot erase” – Evanescence

Impending loss, and how to fail at coping

Fair warning. There’s some depressing shit in this post.

First off, we can’t go through writing some of this stuff again, so we’re copying the post we had to put up on Fb to let Lex’s friends know what was going on. Real names have been changed to protect privacy.

Hello to all of you who are Lex’s friends. I’m sorry it’s been so long, but some things have happened that have been very difficult to cope with, and updating has been far from my mind.

At the time that Lex made her last posts here, she was suffering from a form of psychosis. It’s not 100% clear what the cause was. It caused her to stop taking all of her medication, including her psych meds, and her kidney medication. The upshot of this resulted in her spending some time in the ICU on a ventilator and having dialysis, as her kidneys were not functioning and the weight of the retained fluids were pressing on her chest.

Unfortunately, the blood poisoning caused by her kidneys not functioning worsened the psychosis, causing her to believe that me and her mother were trying to harm her, and she refused to allow me to visit or call her. It’s taken months of dialysis to reverse the blood poisoning and psychosis, but it has, and she is now psychosis-free, thank the goddess. Unfortunately, the time spent without her kidney medication has caused her kidneys to fail, and she now needs dialysis three times a week.

Lex is now living in a care home, and is having dialysis three times a week. Sadly, the dialysis leaves her feeling quite ill, even though it is keeping her alive. This has been such a struggle for her, and she is very worn out. As she cannot accept a transplant due to personal reasons, she knows that this struggle has no discernible ending.

I find the next parts to be incredibly difficult to write, so please forgive me if I struggle to find the words.

Lex has decided that she cannot go on like this, and has made the decision to stop the dialysis, and let nature take it’s course. She has thought long and hard about this, and has talked with me and her mother about it. As much as it saddens us, and we wish it was otherwise, it is ultimately Lex’s life, and it is hers to live, or to leave. We will support her in every way we can, and stay with her to the end. Once she stops the dialysis, she has less than a month.

Our hearts are broken. I talk to Lex’s mother, every week, and we are supporting each other so that we can be there for Lex without breaking down. It is so very hard. 

Lex is currently putting her legal affairs in order, and is giving me Power of Attorney, so that I can carry out her final wishes, both legal and medical, in the way that she wants. I hope you will support me, as I do what I must.

Thank you all for being her friends. I know she treasures each and every one of you. Please, don’t forget her. She is a very special person, and she should be remembered with love and affection.

I’ll do my best to let you know how things are going, so please check back here from time to time.

With a heavy heart, and many tears shed

Nick

So. Our friend is going to die. Soon. That’s incomprehensible to us. I mean, they’re only 52, we should have years of time yet, right. But, we don’t. That future we all thought we had… wiped out. Gone. How can that be?

13 years of close friendship, more than friendship for some, comes to this. It’s beyond devastating. We’re beyond devastated. Except we’re mostly numb. It’s too big, too much, to feel. We can’t go there. We can feel the cracks, see the fractures, know that we’re slowly, inexorably, shattering, shard by shard. The worst is yet to come.

Lex is also Multiple. Some of us have long-standing relationships with some of them. There are families being torn apart, kids losing parents, partners losing partners. Never to hear their voices again. Numb.

They want us to introject them into us, but we don’t think we can. It’s not the same. They speak with a voice that isn’t ours, think with a brain that isn’t ours, they are not us. Introjected, they would be a shadow of themselves, and that would be like being haunted by the loss of who they really are, never-ending reminders of the pain. Can’t face that. Numb.

This has been an ongoing struggle for over a year now, fighting to get them to accept help, to accept that something was wrong, to make the doctors and hospitals see how serious the situation was. It took them ending up in ICU for the doctors and psych docs to see how badly they needed help, and to finally start taking us seriously. By that time, it was too late. Too damn late. FUCK. We were exhausted a year ago. Now, we’re just flat-out finished off. Our own health has suffered, badly. The sheer emotional stress has physically crippled us. We have nothing left to give.

Yet we have to keep giving. Lex need emotional support. Lex’s mother is 89 and lives alone in the US, and needs us too. We have a Partner and kids who need us. We’re running on empty, we have no reserves left, where is all this strength supposed to come from? We don’t know, but we have no choice but to keep going. We’re very afraid of the price we’re going to pay for all of this, mentally, emotionally, and physically.

We really miss being here, with you, our friends. We miss reading your blogs, hearing your words, sharing life with you all. We want so badly to be able to be there for you, to support you, to be with you. In our hearts, we always will be. For now, all we can do is hope that’s enough.

We love you, our friends. 

Ethan

Dunno where this is going, but…

This might make sense, there’s even a remote chance there’ll be pearls of wisdom in here, but don’t hold your breath. It’s more likely to be stream-of-consciousness crap.

It’s been a while so I doubt there’s anyone left to read this, but that’s ok. We haven’t been here to comment or support anyone, so that’s fair.

Our friend has been in hospital since January. In and out, bouncing between the medical hospital and the psych hospital. They’ve had a total breakdown. They spent a week on a respirator in ICU coz they won’t take their meds coz they think they’re poison. They’re refusing to let us visit, or even talk on the phone. They’re refusing to talk to their mum, and she’s 88 and lives in the US and is worried sick. It hurts to be rejected like this. Some of us have relationships with some of them, but now we don’t know if that’s true anymore. Left hanging. It hurts bad. Saddest of all is the cold, dead spot that’s growing where the love used to be. We can only take so much, and they’ve been pretty terrible to us for years. We feel like we’re losing them, already lost them, and we’re losing the will to care. That should break our heart, but somehow it’s just a hollow ache of no-more.

Life is hell sometimes.

Our shrink changed our psych meds. We’ve come off Zyprexa and changed to Seroquel. The plus side is we’ve lost 21lbs. The downside is that it doesn’t seem to keep us emotionally level like the Z did. We’re having highs and lows again, and we’re struggling to cope. Badly.  But after 4 years of being level, the lows are horrific. We’re a turtle in a shell, able to peek out at the world, but incapable of interacting with it. It’s too much. It feels like crushing pressure, and we hate that. We like interacting with our friends. We miss you, all of you.

Especially Jaime, a faint voice whispers. Soft, broken sobbing is heard, then fades away.

We start psychotherapy soon, and that terrifies us. Telling a stranger how we feel, what we think… Who We Are. That we’re here, we’re real, we exist. No no no, that’s all wrong, oh no. Back in the shell, denial denial.

We’re in constant pain now. We don’t see the colo-rectal surgeon till October. October. In 24/7 pain, can’t sit, even lying down hurts. Let’s not talk about the fear of needing the bathroom. Burning, stabbing pain that never ends. And months to wait for surgery. Don’t think we can cope for that long. Pain makes a person crazy out of their minds. We’re crying a lot.

Everything seems like it’s spiraling out of control, like a plane falling from the sky, trailing plumes of smoke and fire in it’s wake. Will we eject before it hits the ground, or will we be paste on the runway. We can’t find the eject button. Oh gods, where is it. The g-force is crushing our chest, it’s so hard to breathe. Don’t wanna write this, don’t wanna say. Wear the mask and pretend we’re good, like always. Don’t be a burden. Ever.

안녕  annyeong